Well it is just gone midnight so now it is Christmas eve. Did the usual go to bed, lay and ache and then get back up. it's windy but quiet and dark.
My ankles and knees hurt. I feel heavy but can't get to sleep with the pain. i yawn I sit I rock In pain I wonder if someone is doing the same I listen At night The sounds Are right Solitude At one With myself I'm done I'll hobble To bed And try again I'll sleep Eventually Till the dog wakes me for a pee! Happy Christmas Eve Sjogrens Jo :)
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Laying and aching
tossing and turning everything burning get up cursing Hot then cold feeling old put on some cream want to scream tacky but dry wish I could cry tingly and numb try a valium stiff ankles and knees feels like they've ceased back and neck pain driving me insane trying to stay calm use some more lip balm relax amd breathe soon it will ease Sorry it has been a while. Nothing has changed, busy during the work days, painful nights and mostly bedbound on non- work days.
I've wanted to blog some nights but I just haven't had the energy. Another comment, thank you. You certainly aren't alone! Here is another littly ditty: As I sit and ponder My mind begins to wander Memories of good times Want to be in my rhymes But now is ok too To myself I am true My family is the best They always let me rest The pain is always here But I can still cheer The good times are not gone They have changed but I still won I can walk and talk and play Most of the time in the day I still laugh and sing I enjoy every little thing Until it's time to sleep And I fall into a heap With memories of the day To comfort me as I lay Happy weekend everone. Sjogrens Jo :) Oh my goodness what a week! So very busy at work and painful nights. Pushed my way through watching The 100 at night so as to try and concentrate on something else other than the pain.
By last night I was so fatigued that my evening dose of pain medication (with calmative) rendered me a dribbling mess, not being able to walk in a straight line to bed and I couldn't understand what I was saying let alone anyone else. This resulted in a lovely deep sleep. :) Have completed 3 hours of work this morning and now ready for some more sleep. It's 10.45 am. Aching all over and need to prepare for going out to dinner tonight. Hopefully can sleep and rest the day away. Good morning, sweet dreams, Sjogrens Jo Sorry it has been a while. I am not in flare any more but so busy with work that I've really been too tired to blog.
It was a lovely surprise to receive a comment. Thank you and I will definately try magnesium. The wine certainly doesn't work. My Sjogrens normal continues and I'm looking forward to the Christmas break mostly for the additional time to rest and sleep. Of course I look forward to spening time with my beautiful family too. I attended a gong bath on Sunday evening and it was amazing. It drew out a lot of feelings especially bad ones and left me feeling calm but drained. Looking forward to the next one in February. Keep smiling Sjogrens Jo Just a quick update... I slept well last night! The only thing I did different was to have a glass of wine! Will definately try that again.
Keep smiling Sjogrens Jo And so the night begins
Try to sleep but the pain wins up and about can't sleep I won't give in and weep Stay calm and breathe In and out - heave Close my eyes - just chill In and out - stay still Listen to the night Closed eyes - don't use sìght The humming of the pump Dogs bark and possums jump Light wind through the tree Birds chirping that I can't see In and out - relax and breathe Don't give in and seathe Take a peek at the stars Only nature, no cars Birds, possums, cats Breathe in and out, relax Concentrate on other things A bird flapping it's wings A possum making a scowl Fighting another, in the trees It doesn't have to rhyme I'm just filling in time Till the pain fades away And in bed I can stay It's easing now the pain I think Perhaps I should have a drink Is it going? I don't know Relax, just breathe slow Listen to the sounds of the night Closed eyes, don't need sight Sleep is coming, I feel it now Dreamkeeper - show me how So I have missed a few days. Now it is Sunday night but I want to start with Thursday.
Thursday was a very busy day at work. Had the normal aches and pains and just for fun my body decided to add some sort of electric shocks in my knee and ankle joints. zap zap zap!! Oh the joys. The ringing in my ears continued to come and go as it pleased causing me to the shake my head and gulp med sentence many times. Must have looked like a right dill. Friday was fairly uneventful. Did 5 hours of work from home followed by couch time with The 100 series. Worse than normal headache. Saturday was preparing for the ride the tide pier to pier which normally I just watch but decided I should give it a go. Well it was bloody terrific just drifting with the tide...until the storm hit and we were pumbled with rain, hail, wind and waves. Thunder and lightning but we made it. Most of us trembling with fright or adrenalin. I had a bit of both and it took ages for my legs to stop shaking then was very weak. The storm came in so fast. So today, Sunday, a restful day of watching movies and washing towels. I am so grateful for everything that I have, where I live, my family and friends and the great times we have together. I'm sure it is only through this disease that I realise just how lucky I am. Right now I am sooo tired but as usual can't sleep. I've got such a busy week ahead. Just got to get through the next 4 weeks till xmas break. Must go now and get some moisturiser into my feet and cover with socks as they are so dry and cracked. Then I'll try to get some sleep. Good night and keep smiling Sjogrens Jo :) Well I haven't blogged in a little while because I took a short break and went on a 4 day cruise to Kangaroo Island. Had a relaxing time though the weather wasn't very good.
Still very fatigued but soldiering on. Not sleeping well at all at night. Ho hum. Oh and my ears keep ringing, giving me the pip. Couch time then bed. Sjogrens Jo :) Finally today this flare defeated me and I went on sick leave at 1 pm. Out of spoons.
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