Just a quick update... I slept well last night! The only thing I did different was to have a glass of wine! Will definately try that again.
Keep smiling Sjogrens Jo
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And so the night begins
Try to sleep but the pain wins up and about can't sleep I won't give in and weep Stay calm and breathe In and out - heave Close my eyes - just chill In and out - stay still Listen to the night Closed eyes - don't use sìght The humming of the pump Dogs bark and possums jump Light wind through the tree Birds chirping that I can't see In and out - relax and breathe Don't give in and seathe Take a peek at the stars Only nature, no cars Birds, possums, cats Breathe in and out, relax Concentrate on other things A bird flapping it's wings A possum making a scowl Fighting another, in the trees It doesn't have to rhyme I'm just filling in time Till the pain fades away And in bed I can stay It's easing now the pain I think Perhaps I should have a drink Is it going? I don't know Relax, just breathe slow Listen to the sounds of the night Closed eyes, don't need sight Sleep is coming, I feel it now Dreamkeeper - show me how So I have missed a few days. Now it is Sunday night but I want to start with Thursday.
Thursday was a very busy day at work. Had the normal aches and pains and just for fun my body decided to add some sort of electric shocks in my knee and ankle joints. zap zap zap!! Oh the joys. The ringing in my ears continued to come and go as it pleased causing me to the shake my head and gulp med sentence many times. Must have looked like a right dill. Friday was fairly uneventful. Did 5 hours of work from home followed by couch time with The 100 series. Worse than normal headache. Saturday was preparing for the ride the tide pier to pier which normally I just watch but decided I should give it a go. Well it was bloody terrific just drifting with the tide...until the storm hit and we were pumbled with rain, hail, wind and waves. Thunder and lightning but we made it. Most of us trembling with fright or adrenalin. I had a bit of both and it took ages for my legs to stop shaking then was very weak. The storm came in so fast. So today, Sunday, a restful day of watching movies and washing towels. I am so grateful for everything that I have, where I live, my family and friends and the great times we have together. I'm sure it is only through this disease that I realise just how lucky I am. Right now I am sooo tired but as usual can't sleep. I've got such a busy week ahead. Just got to get through the next 4 weeks till xmas break. Must go now and get some moisturiser into my feet and cover with socks as they are so dry and cracked. Then I'll try to get some sleep. Good night and keep smiling Sjogrens Jo :) Well I haven't blogged in a little while because I took a short break and went on a 4 day cruise to Kangaroo Island. Had a relaxing time though the weather wasn't very good.
Still very fatigued but soldiering on. Not sleeping well at all at night. Ho hum. Oh and my ears keep ringing, giving me the pip. Couch time then bed. Sjogrens Jo :) Finally today this flare defeated me and I went on sick leave at 1 pm. Out of spoons.
Yesterday, Saturday, I woke at 6.30 am with a migraine. Just bloody terrific! Another day in bed. Up every 4 hours for pain killers to try and keep it under control.
So now it's 8 am Sunday and I've managed to keep it in the background. Hope it stays back there. Feeling weak but trying to muster up the energy for a shower. Perhaps a short nap before I tackle the day. So yesterday was a tough day. My body and mind continues to flare but I made it through work.
Today spent most of the day in bed. The aching in my legs and arms and shoulders just doesn't stop. My brain won't work properly which is hard to explain. My stomach and bowels are growling and stabbing at me, not as bad as last night though. By the way, is anyone out there reading this? A comment would be nice. Doesn't matter really I guess. Hoping to watch a good Netflix movie tonight. Any suggestions? Bye for now Sjogrens Jo Another day nearly over. Just taken some night time pain killers and will relax for an hour before heading to bed at 8.30 pm...if I make it till then.
Really difficult day as I struggled to make my brain work effectively while my legs gave me grief. I got there though and just hope sleep comes more quickly tonight than it normally does. Good night Sjogrens Jo Up at 6.30 to feed and walk the dog. Back to bed till 9.30. My legs continue to ache with added strange pains. Sort of feels like I'm bruised on the inside and when I sit or walk a certain way the pain takes my breath away for a moment.
Made it to the BBQ and had a good time. Just keep taking the panadol. Don't think I posted anything yesterday, bed and couch. Bed time 8.50 pm. Sjogrens Jo. Up @ 4.30 this morning to see my cousin arrive from UK. So happy I did.
Feel like absolute shit. Body aching all over, legs worse. So so tired. Dry. Off to bed after family food fight. Stiil smiling Sjogrens Jo |
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